In development · guides are drafts under clinical review · this is information, not medical advice
Intersex Youth Alliance

Just found the word intersex? Start where it makes sense.

Clear, affirming information about intersex variations, the decisions that come with them, and how to find care that treats you well. No shame, and no rush.

Youth-led · free · for intersex young people and families in the US

Where to begin

What do you need most right now?

Pick a starting point. Each one leads somewhere concrete, whether that is one of our guides or a partner who does that job well.

The short version

Intersex means being born with sex traits, chromosomes, hormones, or anatomy, that do not fit the usual boxes of male or female. It is common, natural, and not a problem to be fixed.

Intersex is an umbrella over more than thirty distinct variations, and each one carries its own biology and its own questions. Some involve health needs that do require care. Many need no treatment at all. What they share is a simple principle: the person, not shame and not stigma, belongs at the center of any decision about their body.

About 1.7% of peopleare born with intersex traits, close to the share of people with red hair.
Leading doctors agree it is realThe Pediatric Endocrine Society says a strict binary definition of sex cannot apply to people with these variations.
Connection protects youAffirming care and peer support are among the strongest protectors of intersex well-being.
Many decisions can waitFor a lot of variations, non-urgent surgery can wait until the choice is yours.
The guides

Find your variation, explained in full.

Each guide follows the same structure: what it is, the biology behind it, how it is identified, what happens through development, health across your life, fertility, and questions worth bringing to a clinician. Affirming, and never pushing surgery.

How to read these. These are plain-language summaries drawn from the medical sources listed at the bottom of each guide, including the Chicago and European DSD Consensus statements, NCBI Endotext and StatPearls, and MedlinePlus Genetics. They are written for understanding, not for diagnosis, and every guide is a draft under clinical review.
Actually useful

Walk into appointments prepared.

Families and young people say the same thing: nobody hands them the practical tools to make decisions. These checklists are that. Save one, bring it, and take charge of the conversation.

Checklist 01

Before any surgery decision

  • Is this medically necessary now, or is it about appearance?
  • What happens if we wait until I can decide?
  • What are the risks, and how often are revisions needed?
  • Is this reversible?
  • Can I talk with an adult who has had this procedure?

Non-urgent, irreversible surgery can very often wait. You are allowed to ask for time.

Checklist 02

Understanding your own body

  • What is my variation, in words I can actually understand?
  • What are my chromosomes, hormones, and anatomy, and what do they mean for me?
  • What, if anything, needs ongoing care for my health?
  • Can I get a plain-language copy of my records?

You have a right to understand your own body. Ask until it makes sense.

Checklist 03

Moving to adult care

  • Which kind of specialist should follow me as an adult?
  • What ongoing screening or hormones do I need, and why?
  • How do I find someone who has treated my variation before?
  • What should I keep from my childhood records?

The jump from pediatric to adult care is where people get lost. Plan it early.

Checklist 04

Finding an affirming clinician

  • Have you cared for someone with my variation before?
  • Do you support delaying non-urgent procedures?
  • Will you explain options without pushing one?
  • Are you listed in an affirming-provider directory?

"LGBTQ-friendly" and "knows my variation" are two different things. Ask for both.

You are not alone

Mental-health support that gets it

Isolation and secrecy are common after finding out, and they weigh on you. Below are affirming therapists, peer communities, and crisis lines that understand intersex lives.

Finding one affirming person, a therapist or a peer or a whole community, is a real first step, and the research agrees. You do not have to carry this quietly.

If you need help right now, you deserve it right now. Call or text 988 for the Suicide and Crisis Lifeline, or reach The Trevor Project for LGBTQ+ young people, any time, any day.

Affirming therapists

Search providers on the OutCare OutList and the LGBTQ+ Healthcare Directory.

Peer community

Meet other intersex people and families through InterConnect and interACT's youth peer space, interSpace.

The community's organizations

A quick map of who does what.

The intersex community has strong organizations, each with a focus. Here is where we fit, and who to turn to for the things we do not do.

Intersex Youth Alliance

Understand and prepare

Detailed guides to your variation, checklists for appointments, and a clear map to everything else.

interACT

Rights and advocacy

The US intersex-led legal and advocacy organization, and home of the youth advocacy program.

Visit interACT →
OutCare / OutList

Find affirming care

A national directory of affirming providers, including mental-health clinicians.

Search OutList →
InterConnect

Community and support

Peer support for intersex people, families, and allies of every age.

Visit InterConnect →
The resource library

Trusted places, sorted by what you need.

A curated set of organizations and tools, grouped so you can go straight to the right door.

For families and friends

The people around someone shape how they heal.

Your acceptance is powerful.

Family and peer acceptance is one of the strongest protective factors for an intersex young person's well-being. You do not need the perfect words. Steadiness, patience, and following their lead go a long way.

  • Learn quietly first. Read a guide before asking them to explain everything to you.
  • Follow their language. Use the words they use for their body and themselves.
  • Slow down decisions. Ask whether a medical step is urgent or can wait for them.
  • Protect their privacy. Their body and diagnosis are theirs to share, on their timeline.
  • Find your own support. Connect with other families through InterConnect so they do not carry your questions too.
About us

A home base, built by someone who needed one.

Affirming, always

We use the community's own language, and we treat variations as natural human diversity.

Clear before anything else

Plain information you can actually use, written for a real person, not a chart.

Clinically reviewed

Every health guide is checked by clinical advisors before it is published as final. Until then it is marked a draft.

Your privacy is yours

You never have to hand over personal medical details to read anything here.

Our mission

Intersex Youth Alliance helps young intersex people understand their bodies and get good care. We explain intersex variations in plain, affirming language, and we point the way to affirming providers, community, mental-health support, and advocacy.

Get in touch

Questions, ideas, or a correction?

We welcome notes from young people, families, clinicians, and anyone who wants to help make these guides better.

Email intersex.youth@gmail.com